Baby Russell's Feet - Our Journey with Clubfoot (Talipes)

This blog was created to detail our son's clubfoot condition. I will be documenting his treatment, the highs & lows and key points of learning to share with other parents. We hope that it will be a resource to those going through treatment and an insight to those around us. Please note: we've moved to WordPress: http://russellsfeet.wordpress.com/

Monday, August 3, 2009

First entry - feet in utero

On my 18 week scan with my second child, I learned two amazing things: I was expecting a baby boy (we thought it was a girl) and that he had a clubbed foot. While the gender was confirmed by the ultrasound tech, the other I kept to myself hoping that I was just being too much of a smarty pants when looking at radiology scans. Not even my husband knew what I had seen.

A few days later, my OB confirmed what I saw - a diagnosis of Unilateral Talipes. Additionally, there was some concern over a spot on his kidney. The foot eclipsed the kidney issue, overwhelming me with immediate questions - would our child meet his milestones, would he require surgery, what would this mean for my maternity leave and our 2 1/2 year old daughter.

We've had an additional scan to examine the foot and kidney issue, along with genetic counseling. According to the genetic counselor at Mt. Sinai Hospital, there weren't any top of mind conditions that present with Talipes and the kidney condition. This is against "Dr. Google" which showed posts all over about possible conditions. Good news so far is that our baby is healthy and normal in all other parameters. Phew!

So where does that leave us? I'm busy trying to connect with Toronto area moms who have dealt with/are dealing with Talipes conditions. My mind is full of practical parenting questions: How to get those messy diaper blow outs away from the casts? What kind of snow suit will work best? Should I take the feet or leg off the sleepers I have? Thankfully, I have had some questions answered and am feeling more positive about managing things.

The next ultrasound will tell us how his kidneys are doing - fingers crossed bucking the trend and getting better. The scans don't indicate how severe the Talipes will be, only that it is present. Stay tuned for more information!

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